Scholarships For Rare Diseases
Scholarships For Rare Diseases - Living with a rare disease can be an incredibly difficult and expensive experience. Even with insurance, the cost of medical treatments and other related expenses can be overwhelming. Fortunately, many organizations offer scholarships to help those with rare diseases cover these costs. In this article, we’ll look more closely at scholarships for rare diseases, eligibility requirements, award amounts, and more.
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What is a Rare Disease?
A rare disease, also known as an orphan disease, is a condition that affects a very small percentage of the population. According to the National Institutes of Health, a disease is considered rare if it affects fewer than 200,000 people in the United States. It’s estimated that up to 30 million Americans are living with a rare disease. Common rare diseases include cystic fibrosis, muscular dystrophy, and Huntington’s disease.
Scholarships for Rare Diseases
National Organization for Rare Disorders (NORD)
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The National Organization for Rare Disorders (NORD) is a non-profit organization that seeks to improve the lives of those affected by rare diseases. NORD offers a variety of scholarships to individuals with rare diseases. These scholarships are open to undergraduate and graduate students as well as high school seniors. The award amount varies, but typically ranges from $500 to $2,500.
The Myelin Project
The Myelin Project is a non-profit organization dedicated to providing financial assistance to those with rare neurological diseases. The Myelin Project offers a variety of scholarships for those affected by rare neurological diseases, including multiple sclerosis, muscular dystrophy, and Huntington’s disease. The award amount varies depending on the applicant’s financial need. Applicants must submit an essay and provide proof of diagnosis.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation (UMDF) is a non-profit organization that offers financial assistance to those with mitochondrial diseases. The UMDF offers two scholarships for those affected by mitochondrial diseases, the Brian & Lorraine Daugherty Scholarship and the Brian Daugherty Memorial Scholarship. Both scholarships are available to undergraduate and graduate students. The award amount varies, but typically ranges from $500 to $2,500.
Source: www.hemophilia.org
Grace Gracely Scholarship Foundation
The Grace Gracely Scholarship Foundation is a non-profit organization that provides financial assistance to individuals with rare diseases. The foundation offers a variety of scholarships for those affected by rare diseases, including cystic fibrosis, muscular dystrophy, and Huntington’s disease. The award amount varies, but typically ranges from $500 to $3,000.
National Hemophilia Foundation
The National Hemophilia Foundation (NHF) is a non-profit organization that seeks to improve the quality of life for those affected by hemophilia and other bleeding disorders. The NHF offers a variety of scholarships to individuals with bleeding disorders, including hemophilia, von Willebrand disease, and Factor V Leiden. The award amount varies, but typically ranges from $500 to $5,000.
Eligibility Requirements
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Eligibility requirements vary by scholarship, but generally applicants must be diagnosed with a rare disease and be a U.S. citizen or resident. Some scholarships also require applicants to be enrolled in an accredited college or university and have a minimum GPA. Applicants may also be required to submit an essay, letters of recommendation, and proof of diagnosis.
Application Process
The application process varies by scholarship, but typically includes an online application, an essay, and proof of diagnosis. Some scholarships also require letters of recommendation and transcripts. It’s important to read the application instructions carefully and submit all required materials by the deadline.
Conclusion
Living with a rare disease can be an incredibly difficult and expensive experience. Fortunately, there are a number of scholarships available to help those with rare diseases cover the costs of medical treatments and other related expenses. These scholarships vary in terms of eligibility requirements, award amounts, and application processes. It’s important to read the application instructions carefully and submit all required materials by the deadline.
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